At a recent check-up, my nephrologist complimented me on how I have chosen to be an advocate for myself and others, rather than a victim of my disease. At the age of 10, I was diagnosed with polycystic kidney disease (PKD), one of the most common life-threatening genetic diseases. Until my early 20s, I didn’t know anyone with the disease except for some family members.
Read MoreSometimes the littlest thing at an unexpected time can trigger emotions that have been building up for a while. For me, it was a hospital food tray.
Read MoreIt was our first New Year’s Day following our move from our home state of Pennsylvania to Northern California in 2010 and there I was, seated on the Donate Life Float in the Rose Parade, waving to people across the world on national TV.
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